Spanish
World Rare Disease Day is commemorated every February 28 (and 29 in leap years), with the aim of raising awareness about rare diseases and promoting equitable access to diagnosis, treatment, and medical care for those who suffer from them.
This date was established in 2008 by the organization EURORDIS (European Organisation for Rare Diseases), and over time it has become a global event, celebrated in more than 100 countries.What are rare diseases?
Rare diseases are those that affect a small number of people compared to the general population. In many countries, a disease affecting less than 1 in 2,000 people is defined as rare. However, there are more than 7,000 rare diseases identified, and together they affect millions of people worldwide.
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Some common features:
- Most are of genetic origin.
- Many appear in childhood.
- They are usually chronic, progressive, and potentially life-threatening.
- Diagnosis can take years.
- There is limited access to specialized treatments.
Importance of Commemoration
The World Rare Disease Day seeks:- Raise awareness in society about the reality of patients and their families.
- Promote inclusive public policies.
- Encourage scientific research.
- Promote early detection and comprehensive support.
