Spanish
It was recognized as a disease by the World Health Organization in 1992.
Every May 12th, millions of people worldwide come together to commemorate World Fibromyalgia Day and Chronic Fatigue Syndrome Day, a date dedicated to raising awareness of an often misunderstood illness that profoundly affects the quality of life of those who suffer from it.
Fibromyalgia is a chronic illness characterized by widespread musculoskeletal pain, accompanied by persistent fatigue, sleep disorders, headaches, memory problems, concentration, and in many cases, anxiety or depression. Although its symptoms can vary in intensity, what those who suffer from it share is a constant experience of discomfort that interferes with daily activities.
There is no curative treatment for this disease. The treatment is comprehensive, which is aimed at improving the patient's physical condition, suffering less fatigue and avoiding pain.
It is estimated that it currently affects 2% to 7% of the world's population, being more common among women. Its cause is still unknown, and there is no definitive cure, which makes its diagnosis and treatment a challenge for modern medicine.
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A day to remember: May 12th was chosen in honor of the birth of Florence Nightingale, the British nurse considered the founder of modern nursing, who suffered from a chronic illness with symptoms similar to fibromyalgia for much of her life.
This day is used by patient associations, health professionals, and activists to organize awareness activities, information campaigns, medical talks, and symbolic acts in squares, hospitals, and community centers. Many buildings are illuminated in violet, the color that represents the fight against fibromyalgia and other invisible illnesses.
One of the biggest challenges faced by those living with fibromyalgia is the invisibility of the disease. As they do not present visible external signs and do not have specific diagnostic tests, patients often face skepticism, both in their work and personal environment, and even from some health professionals.
This generates an added emotional burden to an already debilitating condition. People with fibromyalgia must fight daily not only against pain, but also against stigma, misunderstanding, and isolation.
You can also read: World Lupus Day: Making a silent and complicated disease visible
Although much remains to be discovered, advances in neuroscience and pain medicine are helping to better understand fibromyalgia and its impact on the central nervous system. It is hoped that with more research, more effective and personalized treatments will be achieved.
But in addition to medical advances, a social change is necessary. Understanding that pain does not need visible proof to be valid is fundamental. Empathy, active listening, and support are essential pillars in the fight against this silent disease.
